Random Thoughts

                    Since I just finished vacation, having spent hours of my day conversing about domestic politics and world affairs, playing dominoes, running, biking, swimming, reading all the local rags, embroidering and visiting; some might wonder if it really was a vacation. I can assure you it was because I spent each day exactly as I wanted. Of course this doesn’t count all the random thoughts that race around our heads.
                     I have a few goals for myself and I think of how I will accomplish the physical challenges of those goals. I plan to run a 5k race on Labor Day. My webpage has been idle for three years, and I need to do something with that. This is the site I want to build so I can sell my ornaments. My fear is that one day I shall wake up and have a million orders. That is probably ridiculous to fear that because it would spell success to others. 
                     With some of the things I want to accomplish, the enemy is time. I am at an age that I feel I have to finish some of these projects, if only I did not have a full time job. I am careful how I choose to spend my time. It is sort of like when one buys a house and you build equity. At some point the value of your house outweighs purchasing another house. It makes no sense to double up on payments after you have owned your house for half the life of the mortgage. It is wiser to use your extra money elsewhere.
                     We all have albatrosses around our necks. Our family has a handicap van which typically costs the price of two vans combined (about 42,000). I have thought often about providing a service to those who need transport and are at the mercy of transportation which needs to be reserved 3 days in advance. The rest of the world does not have to reserve three days ahead of time, so why should the disabled community? The cost of the van is paid for with money my son receives in assistance. We would not need a van for transport if he was not part of our family. Having a family member who is wheelchair bound, requires a lot of money. The van had to be financed for ten years, and of course it will probably not last that long. The funniest letter I received was from the bank upon our purchase of the van. “Congratulations on the purchase of your recreational vehicle.” 
                     There are others struggling to maintain what they have. A local young man who just turned twenty-one and previously received 24/7 care in his home has had his services reduced to three hours per day. The young man has multiple disabilities, is non verbal and non ambulatory, and his parents are working full time. I worry about them and what may happen regarding their son’s care. The current financial crisis in the state of Maine leaves many people at risk in the same predicament. In a time when so many people think everyone deserves some sort of handout, I believe the best helping hand is at the end of your arm.  The wallet is empty.
                     It is good to be back from vacation and back into the work mode, but there is always something to do…..and I love it.

 

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Comments

  • 8/17/2010 4:04 PM Pat Roberts wrote:
    Suzan, well said and thought-provoking, as usual. Thanks so much.
    Reply to this
  • 9/2/2010 10:34 AM Don McNeil wrote:
    Sue,
    I have had trouble with my back for years(from an accident in 1989).Although not a crippling disability i take lots of meds everyday for my pain.I can relate to people who are in wheelchairs.My Mom is in a wheel chair now with her MS.You have done a great service over the years with your Muscular Dystrophy work .I am greatful for my awesome wife without whom i dont know where i would be.It is very hard to live with pain everyday but it helps so much to have that support from a spouse.Take Care Sue..........and take time for yourself, you deserve it .
    Reply to this
  • 9/12/2010 11:02 AM Cathy wrote:
    I am saddened by your story about this young man's services being reduced. It is most unfortunate that those who really need the help get very little, or none at all while others seem to get what they need because the system enables them to do so. I will keep him in my thoughts.
    Reply to this
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